When we first got to the hospital, the doc met with us and told us that after studying Seans records, looking at the Xrays, etc. that he felt that he needed to start a little higher on his spine at the base of his neck - which meant taking out the old hardware from his first surgery. Originally it was only going to be from below his old hardware down to the base of his spine and then pins anchored from the base of the rod out to both hips. We went with Sean to pre-op and waited with him while they did all the fun pre-op stuff. I think Dave and I were more nervous than Sean. Then around Noon, they said, okay, its time. They took us to the surgery waiting room, gave us a patient number for Sean so that we could watch the "board" to see what part of surgery Sean was in and gave us a buzzer (like the kind when you are waiting for a seat at a restaurant) in case they needed to call us from the operating room (really, that thought was kind of scary, but it was really just to keep us informed). When we went into the waiting room, it was packed. We found a nice corner to sit in and proceeded to wait. Watch tv, eat lunch, brought some work with me, doze, etc.... As the day went on, there were less and less names on the "board", people began to leave.... we continued to stay and wait and wait. Around 6:00, the doc came in to tell us that Sean had done great with surgery. That they were closing him up and we would be able to see him in a few hours - we finally saw him at 8:30 for just a minute, and then finally in his room at 10:30. Doc explained that everything went fine with removing the old hardware, and all the new hardware was in place. Said that further down the road Sean will need to have another surgery on his neck to correct some bone issues - but nothing to worry about now. Said that some of the bones on his spine were good and strong, while others had some degeneration and some a lot of degeneration. All in all, amazed the kid wasn't in more pain than he was before surgery. Or, perhaps, he just masked it well so that he could play sports and go on a mission and do what others his age do. Some people have asked me why he didn't have his spine taken care of before going on a mission. At first I didn't have an answer for this - we had always known he'd need another surgery, but thought it would be early 20s or so. Prior to going on a mission, Sean had a physical and was ok'd for a mission. We didn't take him to a neurologist before his mission. As I think about this now, and if someone would ask me why he didn't have this taken care of before his mission - I now know the answer. If he had had this surgery before his mission, I'm not sure he would have been able to go on a mission. Sean's mission President had told us when Sean came home that for some a full time mission is 2 years, for others it may not be. For Sean, right now, his mission was 6-months well served and honorable. He said Sean was an awesome hard working missionary and shared the gospel with those in his area. He told us when and if he is able to return, he will be welcomed back to Roseville to continue on. Just a few weeks ago, I received an email from the wife of Sean's first ward mission leader telling me how Sean was truly needed in their area when he was there. That there were people that Sean taught there, that needed Sean to teach them. There was a time and a place for everything - and Sean's time for his mission was needed right then and there. She said he was a great example and was so thankful for having him there and serving his mission where he was most needed. So... now if you asked me why I didn't take Sean to a neurologist before his mission, the answer is because his Heavenly Father needed him to be where he was at the time he was there. So for now, Sean was able to serve a wonderful full time 6-month mission. What the future will hold in this area - is up to our Heavenly Father and his guidance with Sean and what is best for Sean - and when and how it is best for Sean.
Now.... back to the hospital story....The first few days were the roughest. Sean spent most of his time asleep or vomiting. And, I mean VOMITING.... a lot, all the time. It was extremely concerning. But, after a few days, this was better controlled to just a few times a day. The first time the Physical Therapist came in to get him out of bed, I thought, uhhhhh...... he is pretty much comatose, do you really think you are going to get him up - and yes indeed, she was able to get him into a sitting position on the side of the bed. The next day, she got him to stand and walk to the chair in the room. I could see that he was more encouraged at this point - as was I. Yeah - he can move, he can walk. (Really, I was very nervous that he wouldn't be able to.)
We spend about 4 days in ICU and 4 days in a regular room So far, he's racked up a nice bill of $267,000 - so not quite the 6-million dollar man - he could be the quarter of a million dollar man.... And yes, thank you to a wonderful insurance plan that paid almost all of this. (notice, I said almost - but with a bill of $267k, I'm not complaining about our co-pay). I'm amazed at how the recovery has gone over the past few months. The first few days at home, we continued to work on pain management, more vomiting, moving around easily- Sean even scored a new bed since his old bed was not new-rod-in-back friendly. We had a great home health nurse that would come and check on Sean every few days to make sure things were going well. Sean of course didn't care for having a home health nurse - but for me and my peace of mind - and questions and concerns, it was nice to have someone checking on him. We had a few scary days where we had more non-stop vomiting, but fortunately, once again we were able to get that into control. Was very thankful for friends who checked in on Sean and who visited to help keep his spirits up and encouraged him. Special mention to Matt who spent his 10-day military leave here visiting. And, also to Ethan and Brittany for coming and spending their work day's off here as well to visit. And, again to all those who called, visited and asked about Sean numerous times during his recovery. Mission President and mission friends who called or sent emails. And, a surprise visit from David Grow a few weeks ago - former Normal Ward member - who moved to Roseville and was in Seans mission area. Thank you's to all! Friends and Family really are the best way to help someone heal from surgery. Sean's has a great support of friends and family from all over calling, emailing, texting and checking on him.
Yes, this is very long winded, but a lot have asked how things are going, so thought I'd do one long "catch up" on whats going on.
3-months out the doc says Sean is doing well. But had to remind him that he had major major surgery that takes time to heal - in fact takes at least a year for the bones in his back to complete their fusion. Reminded him that he shouldn't be twisting, jumping or doing anything crazy. His body still has to heal and that takes time - and in this case, a lot of time. However, he can start doing things - like very short bike rides to work up his muscles - and yes, even fishing is good - because the casting helps to rebuild the muscles in his shoulders and back - wow - who would have thought that fishing could be pt. Although - playing soccer or lacrosse - probably not such a great idea - but eventually - maybe six months to a year out - perhaps a little. Doc had to remind Sean that this isn't an overnight - "Ta-Dah, you are all better", but instead, each month gets better and where 3-months ago, you thought you'd never walk again, now 3-months later you are moving and able to do things you struggled with a month ago.All and all - things have gotten better. Sean has had to relearn how to do things. Most of us think tying our shoes is not big deal - not so easy for Sean right now because he can't bend over to do it - and one of his hips is not strong enough yet to bend at the knee and pull his foot us to a chair to tie. So the remedy for this ..... boots. So now, he just slides into a sweet pair of "cowboy" ropers and doesn't have to tie them. Also, Sean is looking at going to LDSBC in Utah this winter. When we went to the doc last week, the doc said by winter he should be okay going out to school - and should be able to do the walking he will need to do on campus - but also reminded him, this may tire him out easily - so he will need to plan classes and locations accordingly. But - hey a year from now - things will be even better.
What we've learned - healing takes time and patience. Something this major doesn't heal overnight or in a few months - its a good year before feeling better and than time after that to feel really good. We learn new ways to do things, we learn our limits. We learn that we can stretch a bit. We learn that we can serve each other in ways that we don't always expect to. We learn that you are never to old for Mom to stay up all night in your room and watch Duck Dynasty, or be there to hold the "vomit bucket" while watching Duck Dynasty. We learn to know what real pain is and what selfish complaining is (thats for me - I really felt bad for complaining about the uncomfortable chair that I slept in the first few nights in the hospital - and then I looked at Sean - and knew I had nothing at all to complain about.) We learn that our Heavenly Father is always watching over us and has a specific plan in mind for us - and that we need to listen to that guidance - even when we don't understand the why's, we need to humble ourselves a little more. My Sean is a rockstar in my eyes. I love him forever and then some.
And now... yes, you know it, I have some pictures....... Sean Authorized pictures.... (ok, maybe some weren't authorized, but I'm sure he is okay with it) I saved all the pics showing them the right way, but when I uploaded they are all turned the wrong way.... ick...
I call this, I'm too sexy for my slippers.... |
just waiting for surgery to start... he just wanted to go under as soon as possible. |
This is how Sean spent most of his first few days. |
The old hardware.... in the Biohazard bag..... |
More comatose Sean... |
And sleeping with his iPad... this was a life saver for him - able to watch movies on the iPad... |
Thats a lot of hardware... Thus why it will take a while to heal. |